Thursday, August 30, 2012

Visionaria

For all followers of this blog, it's been a while since my last post.  Had some real issues dealing mentally with not being able to run the Virginia CCFA half-marathon because of my auto accident.  I'll get back to posting about me in a bit.  This post is not about me.   Having said that, I can somehow relate to the subject matter in this post.  The subject matter is a racehorse and yes, I can relate.

There has always been something about watching a horse run that has fascinated me.  Their strength, beauty, elegance and courage is so apparent.

A couple of months after my first surgery in 1974, my parents sent me to my Aunt Rose and Uncle Irv's in Aventura, Florida for a month for some convalescing.  When I left for Florida, I was hoping to relax, gain some of the weight I had lost from being sick before surgery and maybe get a couple of rounds of golf in with Uncle Irv.  My Uncle Irv hit the ball decently, however, he was the best putter I have ever seen.  That includes using a putter from a sand trap (you'd have to see it to believe it).  What I had no idea I would be experiencing while in Florida, was daily trips to Gulfstream Park along with Handicapping 101 class from Uncle Irv.   My Aunt and Uncle lived in a high rise that was about a mile south of Gulfstream Park.  You could see the track from their balcony and, with a good pair of binoculars, get a pretty good view of the races.   I was fortunate enough to be at Gulfstream Park to see Prince Thou Art hand Foolish Pleasure (the eventual Kentucky Derby winner) his first defeat in the 1975 Florida Derby.  By the time I got back home, I was completely hooked.  I knew that someday I needed to be, in some way, more involved with horse racing.

It took 23 years, however in 1998, while working for Verizon, I was at lunch one day with a few business associates of mine and they were talking about horses they had owned together in the past and how they should "do it again".  I asked if they would consider adding me as a partner and they agreed.  The first horse I ever owned was named was Kendall J.  We claimed him for $12,500.00 out of a race at Monmouth Park.  The experience was, in some ways, everything I had anticipated.  The thrill that I got on race days cannot be explained in words.  The only way to understand the feeling is to experience it.  When he won his first race for us, none of the other owners were there, only my daughter Jill (11 years old at the time) and I.  I remember the trip from the owners box to the winners circle as the closest to flying that 2 human beings could do.  I don't thing we touched one stair on the way down.

 
In other ways the experience was everything I did not want.  Including me, there were a total of 4 partners.  One of the owners, my friend Bob, thought along the same lines as I did.  We were in it for the thrill of owning a racehorse.   If in the process we happened to make a little money, great, if not, we were going to get as much enjoyment as possible out of the experience.  Unfortunately, the other 2 owners didn't feel the same way.  They wanted the horse to run as much as possible to ensure that the bills were paid.  The welfare of the horse was not even considered.  In a span of 6 months, Kendall ran 16 races, just an absolute brutal schedule.  He won 2 of his last 3 races.  At that point, we decided to give him some time off, but it was too late.  He died on the farm 2 weeks after his last race.  He was 4 years old.

At the same time we lost Kendall, I was doing really badly with my Crohn's disease.  The narrowing of my intestinal tract was so bad that I ended up having a complete obstruction.  I was actually in the hospital when Bob called with the news about Kendall.  I didn't know how or when I would get back into horse racing, but I knew someday, I would.  At that point in my life, I just needed to concentrate on getting better.  I ended up having surgery that year and then again in 2002.  The fighting spirit that I first saw in horses back in 1975 is the same I have had since being diagnosed with Crohn's in 1970.  In 2003, 33 years after my battle with Crohn's began, I found a way to start winning that battle.  All that follow my blog have read about that battle and have lived with me throughout 2012, hopefully learning some of the things I do to be as healthy today, as I have been in a long time.

With all of the personal illness issues I dealt with, I never lost the desire to once again get in the horse racing business.  One thing I knew is that I would never again get involved with owners that did not have the exact same feeling about racing that I do.  I spoke to Bob early in 2011 about the possibility of ownership.  Bob started his family later on in life and has 3 young children.  Buying a racehorse was not high on his list of priorities.  I decided to look on my own.  In May of 2011 Animal Kingdom won the Kentucky Derby.  In my opinion and I believe most handicappers opinion, the Kentucky Derby is the most difficult race to handicap.  After 36 years of betting the Derby, I finally had my first winner.  What made it more interesting to me was that a "racing syndicate" owned Animal Kingdom.  I spent the entire Sunday after the Derby researching that syndicate along with dozens of others to get a feel for how it works and more importantly to get an understanding of how the syndicate owners felt about racing.  As a big sports fan, anytime I am in my car, typically I have some type of "sports talk" radio on.  Being from New Jersey, WFAN is my station of choice.  The Monday following the Derby, Mike Francessa had Barry Irwin, the owner of Team Valor Intl. (Animal Kingdom's syndicate) on as his guest.  For the next 20 minutes or so I listened to that interview and knew that I had found the racing syndicate I wanted to get involved with.  When I got home, I called immediately and expressed an interest in becoming a partner with Team Valor.  I purposely used the word "investment" when speaking to the VP at Team Valor.  He immediately told me that I should never consider owning a horse an investment, but rather a "life experience".  Within 2 weeks, I was a 10% owner of a filly named La Luna De Miel.  Her first race was one of the best experiences I have ever had.  She came in last.  You may think there has to be a typo somewhere in that last sentence, but there isn't.  I live in Central New Jersey and the race was at Belmont Park on Long Island.  I surprised my wife and step sons by hiring a limo to take us to and from Belmont.  We had such a great time on the rides and also in the owners box.  Coincidentally, I met Mike Francessa in the owners box and told him that his interview with Barry was why I was there that day.  My wife Emily, my step-sons Josh, Adin and I all experienced that same indescribable thrill that I had first experienced 13 years earlier.  Unfortunately, La Luna got hurt that day, needed to have surgery and eventually was sold to a breeder.




My life long struggles with Crohn's has taught me to never give up on anything.  A last place finish and an injury to my horse was not going to scare me away from ownership.  Once she was sold, I bought a 10% share in a 2 year old filly named Visionaria.  Visionaria won 2 of 3 races in Italy (beaten a nose in her only loss) and was then purchased by Team Valor.  She was shipped to the U.S. and was set to run in her first race at my local track, Monmouth Park on August 27th.  Unfortunately, that day coincided with the arrival of Hurricane Irene and racing was canceled.  What happened next, shook that fighting spirit ingrained in me.  Visionaria was being vanned to the track when the storm hit.  I guess it freaked her out and the anxiety led to a bout of colic.  Colic is extremely dangerous and if action is not taken quickly, a potential life threatening condition for horses.  Visionaria's colon flipped 360 degrees on itself.  Luckily, action was taken quickly.  She had emergency surgery and her life was saved.  Just when I thought she was out of danger, I received a call letting me know that she was now dealing with Salmonellosis.  Emily and I had a limited amount of funds budgeted for horse ownership and at that point it was looking like our days as owners was over.  Even though I had never met her, it was at this point when I started to really feel a connection with Visionaria.  Just as I had dealt with a life threatening intestinal surgery as a kid, Visionaria had now done the same.  Just as I had dealt with a life threatening infection after surgery, Visionaria had done the same.  Finally, just as I had fought back against my illness, Visionaria was now fighting back as well.  By November, she was given a clean bill of health.  In mid-December it was obvious that her struggle with her health had taken its toll on her.  Although she was healthy, she had lost all of her muscle tone.  By mid-January things started changing for the better. Visionaria made substantial progress over the next couple of months.  Because she had lost so much of her muscle tone during her recovery from surgery, she was put on a new feed from Belgium which is very good at building muscle mass.  Ok, so now her diet has been changed to make her healthier and stronger.  My connection to this horse is getting stronger every day.

Team Valor, always doing what is best for the horse, took their time with her.  She spent the next few months galloping in South Carolina and was shipped up to Team Valors training facility in Maryland in June.  On June 23rd, she officially went back into training with a 3 furlong workout at 38.2 seconds.  Her next workout was the following week and was a bullet work (best by any horse at that track at that distance on that day) of 3 furlongs at 38 seconds flat.  The Team Valor release to all of its partners that week stated that "Visionaria has not lost any of her quality and is moving like a dream".  The following 2 weeks workouts had her stretching out a bit, first a 4 furlong workout on July 7th and then 5 furlongs on July 14th.  Over the next 6 weeks, she worked out 5 more times, getting stretched out even further on August 25th, when she went 6 furlongs in 1:14.2.  The news release from Team Valor on August 29th finally had the words I've been waiting for.  Here are those words.

" VISIONARIA is almost ready for her return, earmarked for a 7-furlong allowance race on September 19 at Belmont Park. An Italian stakes winner as a 2-year-old, Visionaria has been working with this year’s Oaks d’Italia runner-up Angegreen. They went 5 furlongs in 1:01.80 last weekend."

It's been a long hard fight for Visionaria, but she never quit.  She has that same fighting spirit and courage that I first saw in horses almost 38 years ago.  She needs to be back on the racetrack.

Speaking of a fighting spirit, CCFA's next half marathon is December 2 in Vegas.  I'm thinking my running shoes need to be pulled out of storage and my ass needs to hit the road.

I told you I can relate.



Tuesday, May 22, 2012

May 22, 2012 - Take Nothing for Granted

As someone that has suffered from Crohn's disease since the age of 13, I have learned to really appreciate every healthy day in my life.  Two days ago, I ran in a half marathon in NJ.  It was the last prep race for Team Challenge in preparation for the half marathon on June 2nd.  On Sunday, we all split the race with another team member.  Emily was there to cheer me on and it is days like this that are cherished.  A day later (yesterday) this is what I looked like.


I had brought Emily's car in to be serviced and was on the way home with a loaner car from the dealership.  I was stopped at a red light and the next thing I knew, I was being put in an ambulance.  I was hit by someone that was going at least 50 mph and probably texting.  Luckily, other than being very, very sore, I don't have any serious injuries.

My main concern right now, is that I am healed enough to be able to run in Virginia on June 2nd.  As disappointed as I will be if I cannot,  I will still be thankful for the experience of meeting every one of my teammates and getting to know all of them throughout our training for the run.

I think anyone that suffers from a chronic illness has more of an appreciation for life, but when things like this happen, it really makes me sit back and be so thankful for how wonderful life can be.  Take nothing for granted,  you never know what each day will bring you.

Monday, May 14, 2012

May 14, 2012 - Spectacular Weekend

Wow, what a weekend !  Before I get to the details, I just wanted to say that because I really watched my diet and my physical activity leading up to the weekend, I was able to really enjoy myself without a sign of a flare up.

Got a surprise call from my daughter Jill last Wednesday, letting me know that her boyfriends dad had gotten 4 tickets to the Yankee game on Thursday night and one of those tickets was for me.

Had a great time at the game, which turned out to be a 5-3 Yankee win.  My friend Frank bartends in a private club in the stadium.  We went to the bar for a few innings.  Had a couple of beers and had a bunch of food (burger, soft pretzel, chicken tenders and fries).  Not the best diet, but I deserve it.

Friday night was a family dinner at a restaurant in town.  Emily's entire family was in town for Adins bar mitzvah.  Her mom and dad, brother Jimmy, his wife Jenn and their 3 kids (Jake, Dylan and Arianna) came up from Florida.  Her brother Chuck, his wife Barb and their son Ellery, were in from Chicago, but their flight did not arrive in time for dinner.  My brother Larry, his girlfriend Colleen and my nieces Kari and Tia also joined us for dinner.  Because of the game the night earlier, I only had 1 drink with dinner and had pasta.  With the bar mitzvah the next day and I wanted to take it a little easy this night.

Here is a picture of Arianna playing with our dog Lulu and a video of the twins (Jake and Dylan) jamming out in our music room.


Saturday was bar mitzvah day.  Adin really did a great job.  He worked hard and was pretty much flawless.  The party was spectacular with a ton of great food.  The DJ was terrific!  Everything worked out better than we could have hoped for.  Here is a short video of Arianna, my daughter Jill and Grandma Cindy dancing at the party.


The party ended around 4:30 p.m.  As the co-host of the party, I didn't get to eat as much as I would have liked to, which was probably a good thing.  I did have a bartender chasing me around the entire party with full drinks (vodka), although, I really didn't need her to twist my arm.

Got home around 5.  The whole family came over our house for some late day pizza around 6:30.  I ended up in the basement with Adin, my brother and Frank to watch game 7 of the Rangers/Capitals series.  The Lundqvist shrine, complete with the "broadway hat" worked like a charm, as he had a great game.  The Rangers won 2-1.


Yesterday we all got together at our home for a nice Mothers Day brunch.  That was followed by some street hockey with all 3 generations playing.  I went for a run in the afternoon.  I ran a little over 7 miles, which, considering all the alcohol I had consumed the day before, wasn't bad.

I barbecued dinner around 5 and everyone left for their hotels about an hour later.

I cannot put into words how great the weekend was.  Sometimes, expectations are so great, they cannot possibly be met.  In this case, they were exceeded.  I love spending time with my family, especially when it is centered around such a momentous occasion.  The most important thing for me was that I stayed completely free of even a sign of a crohn's flare up.  Taking care of myself in the days leading up to the weekend made everything possible.

Wednesday, May 9, 2012

May 9, 2012 - CCFA

As my training picks up and I get closer and closer to running my half marathon on June 2nd, I starting thinking about how rewarding it has been to get involved with such a great organization like the Crohns and Colitis Foundation of America.  Here is some information about the organization.

About the Crohn's & Colitis Foundation

The Crohn's and Colitis Foundation of America is a non-profit, volunteer-driven organization dedicated to finding the cure for Crohn's disease and ulcerative colitis. It was founded in 1967 by Irwin M. and Suzanne Rosenthal, William D. and Shelby Modell, and Henry D. Janowitz, M.D.

Four decades ago, the Crohn's & Colitis Foundation created the field of Crohn's disease and ulcerative colitis research. Today, the Foundation funds cutting-edge studies at major medical institutions, nurtures investigators at the early stages of their careers, and finances underdeveloped areas of research. Educational workshops and symposia, together with our scientific journal, Inflammatory Bowel Diseases, enable medical professionals to keep pace with this rapidly growing field. No wonder the National Institutes of Health has commended the Foundation for "uniting the research community and strengthening IBD research."
Main areas of this section include:
  • Our Mission
    To cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases.
  • Your Dollars at Work
    The Foundation consistently meets standards established by the Better Business Bureau Wise Giving Alliance as well as other charity watchdog organizations. Learn more about how we steward your dollars. 
  • Our Members
    Currently the Foundation has over 50,000 members, served by our national headquarters, as well as a over 40 chapters nationwide. As the Foundation is not a government-supported agency, we rely on the support of members and donors to continue our work.
  • Our Sponsors
    Our dedicated corporate sponsors provide significant grants to the Foundation, which have made possible many of our research, support, and education programs.
  • Global Partners
    The Crohn's & Colitis Foundation maintains informal partnerships with a variety of Crohn's and colitis-related organizations around the world for the purposes of cooperation on research and information sharing. 
You can find out more info about the CCFA by visiting their website at www.ccfa.org

Only a little over 3 weeks until the half marathon takes place.  My training is a bit slower than I'd like because of my knees, but if I keep up the proper balance of running and rest between now and June 2nd, I should be fine for the race.

My health remains very good.  I am extra careful with my diet this week because my step-son Adin's Bar Mitzvah is Saturday.  My entire family will be in town, which means lots of dinners out.  That, in turn, means this week has been a week of many shakes and careful eating.

Wednesday, April 25, 2012

April 25, 2012 - Stress and Crohn's Disease

Crohn's disease is not caused by stress; however, emotional stress can certainly cause a flare up of the disease. The stress that people with Crohn's disease sometimes feel is often due to painful, embarrassing symptoms and the worry that accompanies trying to manage them.  Stress can also come from everyday things in life that have nothing to do with Crohn's, but certainly affect Crohns...if you let it.

Whether the stress you are feeling is directly from dealing with your Crohn's or from something else, you need to manage it the best you can.


It is normal to feel angry, afraid, guilty, or depressed about your condition. But dealing with those feelings constructively can help you better manage the stress you are feeling about Crohn’s disease. Share you feelings with people in whom you trust and then manage expectations with friends and family.  Please keep in mind that you are not alone.   Crohn’s disease affects millions of people across all ages and professions. There are ways to manage the often unpredictable symptoms and lead an active, successful life.  Anticipating how well you may feel tomorrow — or on a special occasion two months from now — can be stressful. But there are ways to manage this anxiety. By accepting the reality of that unpredictability, you can help regain some control over how your Crohn's disease takes its course.  Communicate with family and friends so they understand what you need from them. Accepting that some physical limitations may exist from time to time and seeking understanding from loved ones may help you prepare for the times when you may not be able to go where you wish or do what you had planned.  Fear arises from the unknown.   Educate yourself.   Regardless of how long you have had Crohn’s disease, joining a support group can be valuable in helping you understand and relate to your own feelings about your disease.

Many things in our everyday lives cause stress.  How you deal with that stress is key to managing flare ups of your Crohn's.  Let me give you an example.  We have been having some water issues in our basement that I was pretty sure was caused by a faulty outside water spigot.  I called our contractor that we use to come over and take a look at it.  The wall in our basement where the water line attached to the spigot had some bubbling in it.  I was thinking he would replace the spigot and do some scraping, spackling and painting and the job would be done...no big deal.  Well, it certainly turned out to be a very big deal.  Long story short, it had nothing to do with the spigot.  That part of our yard was graded improperly with all ground water graded towards the house.  On top of that, there is a crack in the foundation.  When I moved some furniture, we found mold covering the carpet.  My step-son is being bar mitzvah'd in a little over 2 weeks and now suddenly, half of our home is unusable.  In addition, the insurance company does not cover any of the repairs.  STRESS !!!!  How I chose to handle that stress was the key to not letting it affect my Crohn's.  The first thing I had to do was get a definitive schedule from the contractor, assuring me that it would be done before the bar mitzvah.  Having that info BEFORE my wife got home from work was a biggie.  The money part was something that I decided a long time ago to never stress over.  It may mean doing a few less "fun things" over the next few months...not a big deal.  I chose to make it a positive.  When Emily got home from work, I told her what happened and how we have been talking about re-doing the basement for a while.  This is a great excuse to do that.  I looked her in the eye and promised her that everything would be done before the bar mitzvah.  We then went out to dinner and toasted our new basement.

No stress, no flare ups.  It's as simple as that. 

Sunday, April 22, 2012

April 22, 2012 - "Nothing" to Write About...is a Great Thing !!

I was thinking about my week and about the past month and realized that things have been so good that I basically didn't have any updates regarding my Crohn's, which is a great thing.  Everyone is different, but it certainly indicates that the better you stick to a regimen that works, the healthier you are going to be.  Looking at 2012 thus far, the only times I have flared up have pretty much been when I either went nuts (see Super Bowl XLVI picture below), pushed myself too hard physically (see half marathon training picture) or gone way off my diet (numerous times).  With the race only 6 weeks away I have been really careful with my diet and have found the line not to cross physically regarding training.  The result has been excellent health for the past month and a half.













Training was tough on Saturday.  We are up to 10 mile runs.  My right knee has been pretty sore and my goal right now is to nurse it the best I can through the race.  I stopped after 6 miles.  I have been working on my cardio during the week, without pushing my knee.  I've been spending more time at the gym, working out with lighter weights and basically going non-stop for 45 minutes.  6 weeks to go and I'm just keeping my fingers crossed that my knee makes it through.

Last night was fun.  I got another invite to participate in a handicapping contest at the Meadowlands.  I went with my friend Frank and we partnered on the contest.  Didn't do too well in the contest, however, we did great on our side bets and walked away with a nice chunk of cash.

Today was a special day.  My step-son Adin's hockey team played for the league championship and saved their best game of the year for when it counts the most.  The team they played is excellent and they annihilated them 10-0.  Adin had a spectacular wrap around goal and 3 assists.  Here is the team picture with their gold medals.  Adin is directly behind the goalie.

This week will be time to really step up the fundraising for the CCFA to reach my "running for a cure" goal of $3,000.00.

Sunday, April 15, 2012

April 15, 2012 - My Chiropractor Does it Again

I would never make a general statement like chiropractors are the cure for all that ills.  I would, however, say that MY chiropractor has helped heal a number of pretty severe injuries I've had over the past 15-20 years.  About 20 years ago, I was playing centerfield in a softball game and had a viscous collision with my left fielder.  I was unconscious before I hit the ground and ended up with a herniated disc in my neck.  I had a lot of pain in my neck, couldn't lift my arms above my head and my finger tips of my left hand were numb.  I went to an orthopedic doctor, who, after the MRI showed the herniated disc, wanted to do surgery immediately.  I went for a second opinion and was given the same advice.  I really did not want to have surgery and instead went to a chiropractor.  That did not help much at all.  I tried a different chiropractor, same result.  Six months went by and my symptoms did not get much better.  I love working out and really could not during this period of time, especially, if it involved lifting over my head.  I was about to make the decision to go back to the orthopedic surgeon and opt for surgery, when a co-worker suggested a chiropractor she had used with great success.  I figured, why not, so I gave him a try.  I saw a very different approach right from the start.  He explained to me what was going on and what he was going to do to heal my injury.  A combination of chiropractic adjustments, massage and at home therapy complete cured me.  It took about 6 months of this combination of care, but it was well worth the wait.  Before long, I was doing 200lb. military presses over my head and was probably in better physical condition than I was before I got hurt.  Over the years he has also helped me with an assortment of nagging "I'm getting old" injuries.  You may wonder, why the hell is he going on and on about his chiropractor on his blog dedicated to Crohn's disease?  I am doing this because of the issue with my knee's and how it is affecting my running for Team Challenge of the CCFA.  On Wednesday of this week I had an appointment with my chiropractor and mentioned my knee's to him.  As much as I have used him for a multitude of issues, I never thought of him helping me with my knees.  Sure enough, he did it again.  He first tested my range of motion in every possible direction to determine if there was an injury that he could not help.  Once determining that there was not, he said my knees and shin bones were out of alignment and did an adjustment to help align them.  He then suggested a neoprene brace to keep the alignment where it needs to be when I run.

Well, today, 4 days later, I ran a 5k with Team Challenge, wearing those braces.  Here I am about 50 yards from the finish.



It went great !  A little normal soreness during the first mile and very comfortable thereafter.  It was funny, because the last quarter mile of the run we entered a minor league baseball stadium, ran the warning track and finished at home plate.  There actually was a game this afternoon and the smell of zeppoles as I entered the stadium had me break into a sprint for the finish.  I ran with a couple of my Team Challenge teammates, who are all so inspiring to me.




Having said that, the most inspiring thing of all was hearing Emily screaming my name as I entered the stadium.  A great and memorable day that may not have happened, if not for my chiropractor.  Good job Doc !!

Wednesday, April 11, 2012

April 10, 2012 - A Nice Run

It's been a nice run of health for a while now.  The closer I get to the half marathon, the more careful I have been with both diet and how hard I push myself physically.  Actually, to be perfectly honest, even if I wanted to run 20 miles a day, I can't.  My right knee has been pretty sore for the past week and a half and has really limited my even being able to train properly for this race.  I have a 5k coming up this weekend and I will only be able to run once this week to avoid being too sore for the race.  I just have my fingers crossed that the knee holds up through June 2nd (date of the half marathon).  I'm pretty sure its just a wear and tear thing and not an injury because it feels much better when I don't run.  To try and keep myself in shape without abusing my knees, I have been working out at the gym with pretty light weights, however, non-stop for 45 minutes.  Hopefully, that helps keep me on track for the race?

I have a fundraiser dinner coming up this Thursday and it's looking like there is going to be a huge turnout.  A local restaurant is donating 20% of everyone's food bill that day to the C.C.F.A.  Besides the importance of raising money for such a great cause, it'll be nice to have dinner together with so many friends.

Saturday, April 7, 2012

April 7, 2012 - Crohn's/IBS and Genetics

If you think it's difficult for me to live with Crohn's (since the age of 13), consider how difficult it is dealing with the fact that my soon to be 25 year old daughter Jill deals with major digestive issues that most certainly came from my genes.  She deals with a combination of diseases that are extremely debilitating and virtually untreatable.  First, she has gastroparesis, which is a disease where the stomach empty's way too slowly.  She has to eat very, very slowly and very bland food.  If she eats something too rich or too quickly, it comes right back up.  Once she manages to actually pass food into her intestinal tract, that's when her IBD takes over.  Think about it, a stomach that processes food too slowly and an intestinal tract that processes too quickly.  No magic pill that helps move things along in her stomach while, at the same time, slowing things down in her intestines.  I consider myself a pretty tough and strong willed person having dealt with Crohn's for so long.  I don't compare to Jills toughness as she balances a new career and relationship while dealing with her health issues.  Jill and I are not alone.  Below is a copy of a study done on Crohn's and genetics.

WASHINGTON (Reuters) - Scientists have identified a handful of genes that increase the risk of developing Crohn's disease, confirming that the often debilitating inflammatory bowel disease has a strong genetic component.
U.S. and Canadian researchers scanned the entire genome -- all 22,000 genes -- of about 6,000 people. Approximately half had Crohn's disease and half did not, they reported in the medical journal Nature Genetics.
Previous studies identified two genes involved in the disease.
"I think at this point we have probably up to about eight or nine genes, depending on how you define it," said Dr. John Rioux of the Montreal Heart Institute and the Universite de Montreal, who led the team of investigators.
The researchers said the findings showed genetics play a crucial role in the disease, although environmental factors also are involved. For example, smoking raises one's risk.
Pinpointing the genes that predispose people to Crohn's disease, the researchers said, could help lead to new ways to treat it.
The disease, most commonly diagnosed in people between the ages of 20 and 30, can cause abdominal pain, diarrhea, rectal bleeding, weight loss and arthritis. Chronic intestinal inflammation may necessitate the removal of sections of intestine.
"We have been working toward this for over 10 years to try to put all the pieces together," Rioux said in a telephone interview. "To finally get to this stage where we can look at the entire genome and actually discover a handful of genes, it's very, very gratifying."
Scientists previously had some indications of a genetic component to Crohn's disease. It tends to run in families and is more common in certain ethnic groups, especially people of central and eastern European Jewish descent.
Experts think faulty responses to the microbes that live in the human digestive system somehow cause the immune system to attack the lining of the digestive tract, making it decay and become inflamed.
Rioux said some of the genes identified as risk factors are involved in the body's defense against microbes.

The bottom line is that most of us with Crohn's or any form of IBD not only have to deal with the everyday physical and mental struggles this disease brings, but in many cases,  have an even more difficult task of dealing with our childrens struggles with the same issues.

Monday, April 2, 2012

April 2, 2012 - Crohn's and Dating

Being married, it's been a while since I've dated, however, a "tweet" I read over the weekend from one of my fellow "Crohnies" made me think back about what it was like to date and have Crohn's.  This fellow Crohnie is in the hospital with a major flare up and has a first date scheduled that she obviously could not make.  She was looking for some advice on how to handle the situation.

Dating is difficult enough for healthy people, let alone those of us with chronic health conditions that are difficult to discuss. Crohn's is a disease of young people -- most people tend to be diagnosed between the ages of 15 and 35. This means that there are a significant number of young, single people with Crohn's who have to deal with this issue.

For the Twitter person's case, in my opinion, Crohn's is not a first date conversation.  I certainly don't advocate being deceitful, however, in this case, I would tell a half-truth.  I would say that I couldn't make the date because I am in the hospital, however, would not say anything about Crohn's.  It takes a while for two people to really know each other in a dating relationship.  When you are both comfortable enough to be yourselves, that’s really when you can get a feel for what this other person is really about.  You can learn a lot by seeing how the person you are dating reacts to other people with medical conditions. Without ever bringing up your condition, your date may give you clues about how he or she is receptive to being in a relationship with a person who has a medical condition.  If you decide that you’re having fun being with this person for now, but you don’t think it will go anywhere, bringing up your disease is not really important. If you're well enough during the relationship, you may not feel the need to discuss your Crohn's.

On the other hand, if you do feel like you would like to take the relationship to the next level, in my opinion, it is important to discuss your Crohn's as soon as possible.  It's a sad fact of life...not everyone can cope with the demands of being the partner of someone with a chronic illness. It may be better to find out earlier in the relationship rather than later, when you are more at risk of being hurt and have invested a significant amount of time and energy.

Personally, I was fortunate when I was single.  Not all, but most people I dated were very good as it related to being with me, despite my Crohn's.  I do have an example of why I think discussing Crohn's very early in a relationship is a bad idea.  In 1999, I was scheduled to have surgery for Crohn's.  I had met someone a few weeks before the surgery was scheduled.  On our second date, I told her about the surgery.  She told me on that date, she "could never date someone as young as I was that was that sick".  I never saw her again.  I also have another example of why I truly believe that Crohn's should not be talked about early on in a relationship.  I had a first date in the early 90's where I didn't make it to a bathroom on time.  As horrific as that was, I simply told her that I must be coming down with the stomach flu, because that had never happened before (another half-truth, because it had never happened before...on a first date).  She continued to date me.

Crohn's is difficult and dating is difficult.  Combining the two is certainly not easy, but you can make it a positive.  If you find someone that 100% supports you emotionally when you are going through a bad flare up, you know that you have found someone that will stick with you through anything.